Brian Blake is the prime sponsor of the bill, with Representatives Jim Walsh, Sherry Appleton, Mike Chapman signed on as co-sponsors on the bill in this legislative session.
This bill is named after two children in different part of the state that require medical marijuana for growth, progress and as a life saving medication. This bill has the potential to have a positive impact on these two kids lives as well as many more accross the state.
River lovingly called Ducky is only currently able to attend 1/2 days at school. John, River's father has to get her from campus to give her noon dose of CBD oil. Taking Ducky off campus to administer her medication is too disruptive and she is unable to transition back into the school day. John wrote, "If I had access to River I could give her a cookie with cbd oil in the nurse's office then send her back to class. 7 hours of education is VITAL to getting Ducky back. River was 20lbs. underweight and had started holding her saliva. Zonisamide and Rufinamide were slowly killing her. Shortly after this she would stop eating. 4 days she didn't eat. Dr. wanted to hospitalize her and input a food tube. A couple friends joined the struggle to help her get her ducks in a row. CBD - Medical Marijuana is why she is where she is today. I'm getting her back. Just you watch her".
Imagine having a sick child. Now imagine that child is not allowed access to their life giving medicine while they are at school. What is your alternative? Below is a message from Meagan Holt, this bill will allow her child and other children like her's to attend school.
My name is Meagan Holt and I am writing you today in regards to house bill 1060. It is concerning the use of medical marijuana at school. My daughter, Maddie, suffers from a rare genetic disease called Zellweger syndrome. In early 2015 her disease rapidly progressed and she developed life threatening seizures. Daily hour long events, always requiring CPR. Within eight weeks she had tried over twenty pharmaceuticals and her medical team was out of options. Maddie was two years old at the time and was admitted into hospice with the expectation her life would end soon. This was when we discovered cannabis. Not only is Madeline off hospice, she has weaned several pharmaceuticals, has made cognitive improvements, and breathes through her seizures. Medical marijuana is giving my daughter a quality of life I never thought possible.
I am an active member of my community, serving as vice-chair on the Washington talking book and braille library advisory council, the director of patients for Project PC, a local non-profit, and a Seattle Children's family advisor. After having and IEP meeting with our local school and discovering they did not allow any medical marijuana use on school property I decided to look into the law. I spent 4 months researching, writing, and found that there is a serious flaw in the law. In my efforts meeting with members of the community and my local legislators I discovered another child, River Barclay, who also is unable to fully access an education safely because of this same issue. Her father, John Barclay, was also meeting with his local legislators to discuss the need for a change in the law. We have joined forces to help this bill become law. Currently the law states that schools may adopt policies around medical cannabis use on school grounds however, no school has such policy. House bill 1060 fixes this error in current law preventing
safe access of cannabis medication at schools, clarifies cannabis use in the school controlled substance act, and is tailored to meet the needs of Washington students and school staff. My daughter will be turning five years old on November 1 and it is my hope this legislation will be effective so she can attend kindergarten. For River this means attending school for a full day. I would love to schedule a meeting to sit down and discuss this more with you. I look forward to hearing from you and want to thank you for taking the time to hear from a mom and a dad who just want their daughters to be able to safely access an education. I have attached a before and after photo of Maddie so you can see how much improvement my daughter has made.
Currently the law states that schools may adopt policies around medical cannabis use on school grounds however, no school has such policy. House bill 1060 fixes this error in current law preventing safe access of cannabis medication at schools, clarifies cannabis use in the school controlled substance act, and is tailored to meet the needs of Washington students and school staff. My daughter will be turning five years old on November 1 and it is my hope this legislation will be effective so she can attend kindergarten. For River this means attending school for a full day.
Please read and comment on the bill
The comment button is on the right side of the page, in the dark green bar, “Comment on this bill”. Be sure and send your comments to both of your House Representatives & your Senator. Ask for a reply back. This is a great way to start dialogue with your Legislators.
Komo News Report
Join us in Olympia on Tuesday January 17, 2017 at 8am! Help support Maddie, River, and all of the other children who Deserves Safe and Equal Access to Education! #HB1060 #MaddiesLifeMatters #RiversLifeMatters
King 5 News Report!
Maddie's Law hit the senate!! SB5290 needs your help! Reach out to your local senator and humbly ask them to co-sponsor this legislation that will provide medically fragile children with safer access to education!
Stay tuned for more update, i.e., the next hearing date and time. Plus more videos! Thank you all for your help!!!
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